Goldenhar. What is it and why do I know? It is a 'syndrome' that people are born with. Often the people born with Goldenhar are missing parts and have some other issues. My youngest son, Elliot, was born with Goldenhar. Being born with something apparently means you have to trade something in for it. Babies born with Downs syndrome have to trade in a chromosome, my son had to trade in his left ear and left kidney to get his moniker.
While my wife and I had no idea what the hell Goldenhar was when we were given the diagnosis, we have since learned...little. Not much is known in regards to the whys and whats of this syndrome and each case of it is a little different. That makes it quite difficult to work with the insurance companies when treatment is sought for different things. They will cover a prosthetic ear, but 1 only every 4 years. Fake ears are expensive by the way, maybe to expensive to let an 8 year-old walk the streets with one.
Anyway if you see someone on the street that is missing their ear, do not stare. They may be hearing impaired but they are not blind.
We can fix people cosmetically, but there is no treatment,that I know of, to treating gap-jawed, ignorant, hillbillies.
Thanks.
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6 comments:
Thanks for teaching me something new today.
It's amazing how much we can reveal to others when we are not looking at them face to face. Thanks for sharing. I hope for the best for you and your family.
Kay Buchanan
I hope your son learns to look people in the eye, smile and say "hi" when those ignorant hillbillies are gaping. Best to you and your family. Congratulations on a special child. Only special people get them.
scuzzpuppy
Sad to hear of your son's misfortune. I am sure that he will rise above and reward you with his charm and strong character and make you proud parents.
My father-in-law only has nine fingers, he seems to handle it very well and when people stare, he turns the feeling of being “uncomfortable” into humor… Why should he have to pay full price for a pair of gloves when he only needs nine of the fingers…or that his mother told him that if he didn’t stop pointing at people someday his finger would fall off.
Hopefully your son will be able to deal with the ignorant people of the world and help them deal with ‘their’ uncomfortableness.” (is that even a word?)
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